Information experiences among women diagnosed with endometrial cancer: a mixed methods study

Cancer research · Endometrial cancer

Unmet information needs were moderate‑to‑high in 71% of women at diagnosis of endometrial cancer, and satisfaction with information improved from 50% pre‑diagnosis to over 70% during treatment.

The study explored information needs, satisfaction, and preferred sources among women recently diagnosed with endometrial cancer at the pre‑diagnosis, diagnosis, and treatment touchpoints. Eighty‑two women completed a questionnaire and 24 were interviewed. Moderate‑to‑high unmet information needs were reported in 58% pre‑diagnosis, 71% at diagnosis, and 57% during treatment. Satisfaction scores improved over time, with lowest satisfaction pre‑diagnosis. Doctors and the internet were the most cited preferred sources. The study concluded that timely, clear, and compassionate information delivery is crucial for supporting women throughout their cancer journey.

Women with endometrial cancer frequently experience gaps in information, leading to anxiety, poor decision‑making, and suboptimal care. Understanding when and how information is needed can guide clinicians and policymakers to optimise supportive care and improve patient outcomes.

Evidence level: Számítógépes vagy elméleti. Modellből vagy adatbányászatból származó jel.

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